Bringing awareness to PKD is so important to me and others because it has affected not only our love ones we lost but our lives as well. Hearing the doctor tell me my son had ARPKD(Autosomal Recessive Polycystic Kidney Disease) and he had a 50% chance of survival. My heart fell out my chest💔 and at that moment I knew I had to do something. My story has to be heard because if I tell my story I can encourage others to tell their story so rise up and tell your story. Our stories matters and can make a big impact on the world. So if you are not certain about coming out with your story I’m encouraging you to speak up because your story can help someone else. We are in this together and you’re not alone. Tell ya story!!